Doneer nu

NIC-FTD

Delen

Study coordinators: dr. Y. Pijnenburg & dr. S. Ducharme

Project time: 2020 – present

Dutch description

Wat? ‘Neuropsychiatric International Consortium on Frontotemporal Dementia’ is een internationale samenwerking met als doel de ziekte frontotemporale dementie (FTD) verder ontrafelen. NIC-FTD richt zich op het verbeteren van diagnostiek en het opdoen van kennis over de prognose, het ziekteproces en nieuwe biomarkers van FTD.

Voor wie? Dit onderzoek richt zich op het bijeenbrengen van FTD-professionals.

English description

Participants of the Neuropsychiatric International Consortium on Frontotemporal Dementia (NIC-FTD) are research centers from all over the world with a special interest and expertise in both frontotemporal dementia (FTD) and psychiatric diseases.

FTD is one of the most common early-onset type dementias worldwide. FTD shows large symptomatic overlap with psychiatric disorders, such as schizophrenia, bipolar disorder, and autism. FTD patients often receive a psychiatric diagnosis initially and vice versa. An early and correct diagnosis is pivotal since psychiatric conditions are potentially treatable, whereas FTD is not. Diagnosing FTD versus psychiatric disorders accurately remains challenging for clinicians due to lack of reliable clinical assessment methods and specific biomarkers. NIC-FTD aims to improve clinical assessment tools and biomarkers to differentiate between FTD and psychiatric disorders. Therefore, the key objective of NIC-FTD is to build a shared research database by collecting data of clinical characteristics, neuropsychological and cognitive behavioral assessments, neuroimaging and fluid biomarkers of FTD patients and patients with psychiatric disorders, enabling collaborative research in this important field.

NIC-FTD 2

First live meeting of NIC-FTD (summer 2018 Sydney, Australia)

Participants:

Australia

Sydney: Olivier Piguet, Emma Devenney, Fiona Kumfor, Ramon Ramero, John Hodges

Melbourne: Dennis Velakoulis, Dhamidhu Eratne, Wendy Kelso, Samantha Loi

Brasil

Belo Horizonte: Leonardo Cruz da Souza, Paulo Caramelli

Sao Paolo: Leonel T. Takada, Sonia Brucki

Belgium

Leuven: Jan van den Stock, Rik Vandenberghe, Matieu Vandenbulcke

Canada

Montreal: Simon Ducharme

Quebec:  Robert Laforce, Caroline Dallaire-Théroux

Toronto:  Mario Masellis

Colombia

Bogota: Sandra Baez

Finland

Kuopio: Eino Solje

France

Lille: Florence Pasquier, Maxime Bertoux,

Paris:  Isabelle Le Ber, Richard Levy, Carole Azuar

Germany

Munich: Janine Diehl-Schmid

Leipzig: Matthias Schroeter

India

Bangalore: Ratnavalli Ellayosyula

Italy

Milan: Elio Scarpini, Daniela Galimberti, Giorgio Fumagalli

Pavia: Chiara Cerami

Trento: Alessandra Dodich

Japan

Osaka: Manabu Ikeda

Spain

Barcelona: Ignacio Illan-Gala

Sweden

Lund: Alexander Santillo, Maria Landqvist Waldö

The Netherlands

Amsterdam: Flora Gossink, Yolande Pijnenburg, Jort Vijverberg, Sterre de Boer, Dirk van Paassen

Rotterdam: John van Swieten, Harro Seelaar

United Kingdom

Norwich: Michael Hornberger

United States of America

Baltimore: Chiadi Onyike

Cleveland: Alan Lerner

Denver: Peter Pressman

Los Angeles: Mario Mendez

New York: Edward Huey

Rochester: Bradley Boeve

San Francisco: Howard Rosen, David Perry, Kate Rankin

Are you interested to become involved with NIC-FTD or do you want more information, please contact us by sending an email to nicftd@amsterdamumc.nl

Top
Volg ons via